Share your story
Help train tomorrow's researchers and healthcare providers. Participants are needed for a study on the lived experience of disability, chronic illness, and neurodivergence within the biomedical ecosystem — research, healthcare, and education.
The study at a glance
- Study
- Lived Experience in the Biomedical Ecosystem, Faculty of Medicine, University of Ottawa
- Who
- Adults with lived or living experience of a disability, chronic illness, neurodivergent condition, or related health experience
- Time
- A 45–90 minute interview, or another accessible format of your choice
- Language
- French or English
- Compensation
- Provided for your time and expertise
- Contact
- Nadine.WiperBergeron@uottawa.ca
Your lived experience is a form of expertise.
About the study
Do you live with a disability, chronic illness, a neurodivergent condition, a mental health condition, or another experience that has shaped how you interact with healthcare, biomedical or clinical research, or education? Your story will help train future members of this ecosystem — biomedical researchers, clinical researchers, and healthcare providers — at the University of Ottawa.
Led by the Faculty of Medicine as part of course MED5114 (Diverse Perspectives in Biomedical Research and Healthcare Systems), this project is collecting narratives from individuals with lived experience of disability, chronic illness, neurodivergent conditions, or other health-related realities.
Who can participate?
- 18 years of age or older
- Able to communicate in French or English
- Lived or living experience of a disability, chronic illness, neurodivergent condition, or related health experience
What participation involves
- A 45–90 minute interview (in person, by phone, or online), or another accessible format of your choice
- Fully voluntary, confidential, and flexible participation
- You decide how your story is used and can review it before it's shared
- Compensation is provided for your time and expertise
Share your experience your way
Accessibility is a core principle of this project. You can share your experience in whatever way works best for you. Accommodations and communication supports will be provided wherever possible.
- An interview
- A written narrative
- An audio or video recording
- Photographs with a written explanation
- Assisted communication technology
- Another accessible format
To learn more or take part, contact us
Participation is entirely voluntary.
Research ethics
This project is currently under review by the University of Ottawa Research Ethics Board. REB file number: H-10-26-13438.
Study: Lived Experience in the Biomedical Ecosystem, Faculty of Medicine, University of Ottawa.
Not ready to take part?
The ACCESS Lab is developing projects to better understand the lived experiences of disability in research, education, and health care. If you are interested in contributing your perspective, join our contact list to receive updates about future participation opportunities, pending ethics approval.
To join, email Nadine.WiperBergeron@uottawa.ca with the subject line "Contact list".